Caitlin Presley Downing
  • Checks can be made payable to: WCMC Department of Neurological Surgery Mailed to: Dr. Mark Souweidane c/o Ms Ana Ignat 520 East 70th Street Box 99 New York, NY 10068
  • WCMCDepartment of Neurological Surgery
    520 East 70th St. Box 99
    New York, NY 10068

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“Denise and Jeff, I never knew Caitlin, however I could not believe my what I was seeing on the news last week. My heart and prayers go out to you and...Read More »
1 of 100+ | Posted by: Lauren Blough - Apopka, FL

“Dr.Downing , Denise , and family. I can't begin to express how very sorry I am with your loss. Her smile lit up the office everyone she came into...Read More »
2 of 100+ | Posted by: Diana Hagstrom - Casselberry, FL

“Downing Family, Our hearts and prayers go out to you and your family. With Our Deepest Sympathy, Karla & Lincoln Salmon ”
3 of 100+ | Posted by: Lincoln & Karla Salmon - Oviedo, FL

“Our prayers are with you and your family as you go through these hard times. We will remember your precious angel and the joy she gave so many...Read More »
4 of 100+ | Posted by: Dreama Melton - Oviedo, FL

“Our family will continue to pray for your family. The service was beautiful, your little angel will be proud of your family. The service was a...Read More »
5 of 100+ | Posted by: Janet and Frank Ambrose, and Izzy Bencivenga - FL

“Downing Family Our deepest sympathy for your loss. May God touch your hearts with His peace in knowing that Caitlin is free from the limits of this...Read More »
6 of 100+ | Posted by: Steve & Gail Guillemette - FL

“Caitlin's Dreams In Loving Memory of Caitlin Downing(The Angel of Oviedo) Christmas will be always thereAt Caitlin's family and everywhere.It will...Read More »
7 of 100+ | Posted by: Victor Pagan Sr. - Oviedo, FL

“Your in our prayers and thoughs ”
8 of 100+ | Posted by: Mike & Betty Schneider - Orlando, FL

“From my family to yours... Our thoughts and prayers are with each and everyone in your family! God Bless.... ”
9 of 100+ | Posted by: Dana - Oviedo, FL

“My deepest sympathies to all the family. Having a child in Heaven (I have two) is a unique mixture of pain and happiness. Time heals the pain of...Read More »
10 of 100+ | Posted by: Billie LomonacoBlomonaco - FL

“Heaven has welcomed you Caitlin. We will miss you. ”
11 of 100+ | Posted by: Dorothy L. Binney - Orlando, FL

“Dear Dr. & Mrs. Downing, Courtney, Cole, and Campbell: It is with great sadness I learned of Caitlin's passing through my friends and neighbors,...Read More »
12 of 100+ | Posted by: Nancy Wheeler - Oviedo, FL

“Jeff, We have prayed for you and your family and know she is doing great things in heaven. May God continue to bless you and your family. Aaron...Read More »
13 of 100+ | Posted by: Aaron Karr - Florence, AL

“Our thoughts and prayers are with the entire Downing family on the loss of your beloved Caitlin. ”
14 of 100+ | Posted by: Rick and Pam Parker - FL

“I learned about Caitlin through FB when one of my friends, Liz McKernan, shared your blog in September! I read your entire blog and feel so inspired...Read More »
15 of 100+ | Posted by: Jennifer Peacock - Williamstown, NJ

“I "met" Caitlin through the newspaper articles. Though I never met her in person, my heart was broken to hear that she would no longer be with us. I...Read More »
16 of 100+ | Posted by: Jeannette McIntosh - FL

“RIP my sweet angel. I will miss and love you more each day. ”
17 of 100+ | Posted by: Marylou Hall - Orlando, FL

“Dr. Downing andfamily, I was so sorry to hear about the loss of your beautiful little girl. I have followed your journey in the paper and you have...Read More »
18 of 100+ | Posted by: Beth Holliman - Longwood, FL

“Dear Dr. Downing and Family, I am so very sorry for the passing of your sweet baby girl Caitlin. I hope you will find comfort in the beautiful...Read More »
19 of 100+ | Posted by: Susan Lucia - Casselberry, FL

“My heart aches for the loss of your precious little Caitlin. She is one of God's littlest angels now and will live in your hearts forever.May God...Read More »
20 of 100+ | Posted by: Linda Hart - Orlando, FL

21 of 100+ | Posted by: Daniel M Serafine - ORLANDO, FL

“No words can express how sorry I am for the loss of Caitlin. Only an hour after I heard the news, I saw a rainbow in the sky and thought of her. ...Read More »
22 of 100+ | Posted by: Jennifer del Fonzo - orlando, FL

23 of 100+ | Posted by: Donna Prince Serafine - ORLANDO, FL

“You touched so many lives in our community and will NEVER be forgotten. You showed more strength than a five year old should ever have. God Bless you...Read More »
24 of 100+ | Posted by: Angela Shaffer - Oviedo, FL

“So sorry for your loss - everytime we see a rainbow we will think of Caitlyn! ”
25 of 100+ | Posted by: Laura McDonough - Warminster, PA

“On behalf of Chet Tokar's office of Edward Jones we offer our deepest sympathy and prayers for your family at this time. We didn't get the pleasure...Read More »
26 of 100+ | Posted by: ReGina Gouge - Oviedo, FL

“Our deepest sympathy and condolences go out to the Downing family in the loss of your precious Angel Caitlin. You are in our thoughts and prayers. ”
27 of 100+ | Posted by: Josephine & Tom McGlinchy - FL

“Every time we see a rainbow, we will always think of you . Our prayers, blessings and all our love. Love, ...Read More »
28 of 100+ | Posted by: Joe and Linda Roberts - FL

“I am so sorry for the loss of your precious litte girl. She is now in God's loving hands. Be thankful for the memories you all have had together as a...Read More »
29 of 100+ | Posted by: Susan Shackelford - FL - friend

“My thoughts and prayers are with the amazing Downing family your strength with dignity is a lesson for many. caitlin will be remembered lovingly...Read More »
30 of 100+ | Posted by: Mardi Shankle - Oviedo - friend

“I imagine there is no pain more far-reaching and deeper than losing a child. My heart and prayers go out to your family at this most difficult time. ”
31 of 100+ | Posted by: Maria Polo - New York, NY

“May God hold you tight and know that Caitlin is smiling down on all of you...on all of us. Her light and legacy will continue on. Our thoughts and...Read More »
32 of 100+ | Posted by: Jackie, Lee, Samantha and Michael Hart - FL

“"If every tear we shed for you became a star above; you'd stroll in Angel's garden, lit by everlasting love." ~Author Unknown Rest in peace sweet...Read More »
33 of 100+ | Posted by: Debbie Routh - Orlando, FL

“Jeff and Denise, I am so sorry for the loss of your beautiful girl. Thank you for sharing Caitlin with the world and by that we are all forever...Read More »
34 of 100+ | Posted by: Stacey DaRosa - Oviedo, FL

“Such a sweet little angel! You will be forever remembered, hope to meet you one day :) ”
35 of 100+ | Posted by: Joanne Sheldon - Schwenksville, PA

“Jeff-Denise and Family,I was blessed to meet and smile with Caitlin several times while she assisted Dr Dad in the office. I gave her an airplane...Read More »
36 of 100+ | Posted by: Craig Bailey - wINTER PARK, FL

“Our thoughts and prayers are with you. Heaven received an angel and she will never be forgotten on earth. God bless the entire Downing family. Mitch,...Read More »
37 of 100+ | Posted by: Vickie Geraci - Oviedo, FL

“Caitlin Presley Downing will never be forgotten, but remembered always for her kind gentle soul. The number of people she has taught lessons to,...Read More »
38 of 100+ | Posted by: Stephanie Turner - Oviedo, FL

“I am so sorry for the loss of your sweet Caitlin, I've never met Caitlin in person but have been forever changed because of Caitlin and Her Mom's...Read More »
39 of 100+ | Posted by: Linda Jordan - Ocoee, FL

“We live in Live Oak. We never had the chance to meet Caitlin or your family. But we feel touched by your story. We offer condolences and prayers. ...Read More »
40 of 100+ | Posted by: Judy Rivera - Oviedo, FL

“We never met Caitlin personally, but we heard about her through Partin Elementary where my sons go to school. Thank you for writing your blog and...Read More »
41 of 100+ | Posted by: Sara Levin - Oviedo, FL

“We love you so much and will miss you. ”
42 of 100+ | Posted by: Uncle Jason, Aunt Holly, Nolan, and Liam

“A little light has left this world less bright, her family, bereft, and a community grieving. Caitlin left behind an indelible mark that will...Read More »
43 of 100+ | Posted by: Janet Cooper - Winter Springs, FL

“Our hearts are heavy with sadness and tears. Please know we are thinking of you during this difficult time. May your hearts and souls find peace and...Read More »
44 of 100+ | Posted by: Keith and Renee Williams - FL

“Downing family, Please know we think about you guys (and have been throughout Caitlin's battle) every day. Denise & Jeff, you've shown such GRACE,...Read More »
45 of 100+ | Posted by: Jason, Melody, Dylan & Carter Raymond - FL

“To the Downing Family, You have been in my thoughts and prayers every day and will continue to be. Caitlin has touched our life in a way that will...Read More »
46 of 100+ | Posted by: Shannon Lemly - Lamar, AR

“I never knew Caitlin or the Downing family personally but was touched by her story. My heart broke when I read that Caitlin had lost her battle. She...Read More »
47 of 100+ | Posted by: Amanda Dalton

“Our heart goes out to Caitlin, and the whole Downing family. Caitlin and the Downing family will always be in our thoughts and prayers. God Speed,...Read More »
48 of 100+ | Posted by: Eugene Wagner - Boca Raton, FL

“Your Angel sits on the lap of Jesus, looking down upon us. No longer in pain, no longer afraid. Thank you so much for sharing your journey with...Read More »
49 of 100+ | Posted by: Cherie - Chuluota, FL

“There's no words to express how Caitlin's touched our hearts.We are praying for your family and sending our love to that little angel that is...Read More »
50 of 100+ | Posted by: Vicky Carrillo - oviedo, FL

“It's hard to know just what to say, When one so young is taken away. Far too soon she had to part, Her memory forever engraved in our heart. We only...Read More »
51 of 100+ | Posted by: Cheryl Doan - Ocoee, FL

“We will continue to keep you in our daily thoughts and prayers Emily and Mikesincr ”
52 of 100+ | Posted by: Emily and Mike Hardison - FL

“There are no words to express how truly sorry we are for all your family has had to endure. May your love for each other and your precious memories...Read More »
53 of 100+ | Posted by: Rosemarie Redman - Oviedo, FL

“I don't think I will ever see a rainbow and not think of your sweet little girl. My life has been forever changed by your story and I hope and pray...Read More »
54 of 100+ | Posted by: Michelle Iseman - Oviedo, FL

“Our thoughts and prayers for your family. May God's love and light shine upon you and your loved ones.The Laureano Family ”
55 of 100+ | Posted by: Lydia Laureano - Oviedo, FL

“Rest in peace sweet Caitlin. You have touched so many hearts then anyone could ever imagine. Our hearts will forever cheer for you. Spread your...Read More »
56 of 100+ | Posted by: The Barolet and Beggs Family - FL

“Prayers for your family through this unimaginable time. Caitlin legacy will never be forgotten. Ever time we see a rainbow we will think of Caitlin! ”
57 of 100+ | Posted by: The Koru Family - Oviedo, FL

“I will always think of Caitlin when I see a rainbow now. Have fun painting them across the sky, sweet angel! ”
58 of 100+ | Posted by: Gini Cullins - Auburndale, FL

“Thank you Caitlin for changing our world and many thanks to the Downing family for sharing your daughter with us. Our thoughts and hearts are with...Read More »
59 of 100+ | Posted by: The Gibson's - Johnny, Molly, Jack, Grant and Tyler - FL

“Wishing you peace to bring comfort, courage to face the days ahead and loving memories to forever hold in your hearts. ”
60 of 100+ | Posted by: Ginny, Jordan and Ty Brennan - PA

“Heaven has received a precious Angel. Our thoughts and prayers are with the Downing family tonight, as they have been for months. May God's love...Read More »
61 of 100+ | Posted by: The Mantia Family - FL

“Denise, Please know that I am praying for you and your family. We have not talked in years, but I want you to know that when read about your daughter...Read More »
62 of 100+ | Posted by: Patricia Patterson - Chuluota, FL

“Rest in Peace Beautiful Girl. You made the world a brighter and better place to be. We Love you Caitlin and hope you enjoy your new Angel Wings <3 ”
63 of 100+ | Posted by: Sarah - chuluota, FL

“Thank you for opening my eyes. I'm always trying to work overtime, but now, I understand I don't want to miss time with my baby. Beautiful little...Read More »
64 of 100+ | Posted by: Ilen Abad - Orlando, FL - admirer

“May peace be with you all...Your little Angel will always be near. ”
65 of 100+ | Posted by: Jodie - Orlando, FL

“We never met you Sweet angel Caitlin, but your story touched me more than you will ever know. My heart breaks at your passing but you had the easy...Read More »
66 of 100+ | Posted by: Summer Aiello - Minneola, FL

“I will miss your hugs and beautiful smile! I'm truly blessed that I was able to be a part of your short life! Thank you for giving a new meaning to...Read More »
67 of 100+ | Posted by: Nellie Thompson - Oviedo, FL

“Jeff, Denise, Courtney, Cole & Campbell - Our deepest thoughts and prayers are with you during this difficult time. Always know that Caitlin is now...Read More »
68 of 100+ | Posted by: The Ackermans - Oviedo, FL

“No words can describe the immense pain and sadness I feel for your family and the loss of Caitlin. You have no idea the impact you have made on this...Read More »
69 of 100+ | Posted by: Alexandra del Llano - Chuluota, FL

“Our deepest sympothy goes out to your family. May our Lord bring you strength through this time of need. God Bless. ”
70 of 100+ | Posted by: Becky & Mike Fetcho - FL

“May god bless you and comfort you in this time of sadness. Your family is in our thoughts and prayers. ”
71 of 100+ | Posted by: Toni Cramutola - Franklin, TN

“Please accept my deepest condolences. My heart is aching for your loss. What an amazing little girl Caitlin who reminded us all about true values...Read More »
72 of 100+ | Posted by: Kate Malahina - Oviedo, FL

“Dear Downing family, I just learned about your sweet Caitlyn's story a week ago, and since that time I haven't been able to stop thinking about her ...Read More »
73 of 100+ | Posted by: Sherri Brokaw - Apopka, FL

“My heart aches for the entire Downing family & community at the loss of this precious baby girl. I am thankful that she is no longer in pain & I am a...Read More »
74 of 100+ | Posted by: Cori Williams Oler - MD - friend

“Our thoughts and prayers to all of the Downing Family. Caitlin's rainbow will forever shine down on all of you. Love, Jim, Alicia Olivia and Elena ”
75 of 100+ | Posted by: Alicia Hartung Krummert - PA

“I pray that your family finds peace through the most difficult of times. Caitlin's story , your family and friendship have brought a community...Read More »
76 of 100+ | Posted by: Stephanie Calleja Calhoon - FL

“My heart breaks for your family. May God hold you close and bring peace and comfort to your family. ”
77 of 100+ | Posted by: Dawn Thomas - Oviedo, FL

“Downing Family, my deepest sympathy for the loss of this beautiful little angel, who, in her short life has truly left such a huge impact on the...Read More »
78 of 100+ | Posted by: Lisa Martinez - Oviedo

“That glorious smile will live on in the hearts and minds of all of us who have been so touched by this little angel. Although her time here on Earth...Read More »
79 of 100+ | Posted by: Janet Ivey - Lake Mary, FL

“Caitlin brought an entire community together with her beautiful story and she will always have a special place in my heart. May God Bless this...Read More »
80 of 100+ | Posted by: Susan Harrington - Winter Park, FL

“God has gain a small, but mighty angel! ”
81 of 100+ | Posted by: Jhana Blackwood - oviedo, FL

“You are the most special and beautiful angel in heaven, sweet Caitlin. Praying for my favorite Dr. and his family...may God give you all comfort. ...Read More »
82 of 100+ | Posted by: Ami Monaldi - Charlotte, NC

“God just received the most precious angel! Praying that you are able to find peace during this time. May God bless you and give you the strength that...Read More »
83 of 100+ | Posted by: Amy Gardner - Winter springs, FL

“In order for one to have a hole in their heart when someone moves on, the space of that person must have belonged to a very dear and beautiful person...Read More »
84 of 100+ | Posted by: The Malafronte Family - FL

“My heart is broken i loved that little smile of hers she was the best little girl i could ever have asked to meet shine bright and pump it up in...Read More »
85 of 100+ | Posted by: Carly caraway - geneva, FL

“My heart breaks for your family as I think of what you have been through. I pray that you find peace knowing that sweet little Caitlin is no longer...Read More »
86 of 100+ | Posted by: Krista Darling - Oviedo, FL

“In loving memory of your precious angle we all love and will be greatly missed with broken hearts , love and prayers Caitlin will always will be in...Read More »
87 of 100+ | Posted by: Becky, Brooke. And the Connelly family - FL

“When prompted to 'pick a candle', I wish I could have chosen a 'Hello Kitty' as I remember how much Caitlin loved that character. Her story spread...Read More »
88 of 100+ | Posted by: Nancy and Mike Murphy - Oneonta, NY

“We have learned so much about life, love and family from such a precious little girl. Though we never had the chance to meet Caitlin in person, our...Read More »
89 of 100+ | Posted by: The King Family - Newtown, PA

“I have followed your families journey from day one. I have prayed hard for all of you and will continue to pray for you. For your parents to find the...Read More »
90 of 100+ | Posted by: dawn leonard - Bensalem, PA

“We believe God just received the Sweetest Angel<3 Prayers and Hugs to your entire family. ”
91 of 100+ | Posted by: The Kostelyk Family - Oviedo, FL

“Even though I had never met Caitlin she brought so many smiles and happiness to me through all the beautiful pictures friends and family have shared...Read More »
92 of 100+ | Posted by: Adrienne Vanselous - FL

“May god be with you in this hard time in your life. ”
93 of 100+ | Posted by: Carrie Millar - ORLANDO, FL

“To the Downing Family, I am so sad to hear of the passing of your sweet daughter Caitlin. While I never had the honor of meeting her, I followed he...Read More »
94 of 100+ | Posted by: John Campbell - Boston, MA

“With a heavy heart and sorrow in my soul I send this with love for the Downing Family. Jeff, Denise, Courtney, Cole and Campbell your strength and...Read More »
95 of 100+ | Posted by: Lauren Gold - Waterford Lakes, FL

“God bless your sweet angel- prayers for your family as you face such a difficult time. When I see a rainbow a prayer will be said for Caitlin and her...Read More »
96 of 100+ | Posted by: Sylvia Lee - Winter springs, FL

“There are no words to take away your pain or to express the impact that Caitlin had on the lives of people who have never even met her. I truly am...Read More »
97 of 100+ | Posted by: Kim

“Our deepest sympathies to the entire family. We will always remember her amazing smile. She has truly touched all our lives. ”
98 of 100+ | Posted by: The Lowe Family (sister of Mack Hanbury) - FL

“What a short but powerful life Caitlin lived. She changed a community and touched more people than we will ever realize. I will never look at a...Read More »
99 of 100+ | Posted by: Becca Rouse - Chuluota, FL

“I am so very sorry for your loss. Like everyone who met Caitlin or heard about her, I will always remember her smile and courage. I pray that our...Read More »
100 of 100+ | Posted by: Jeanette Stricklin - Laurel, MS

Caitlin Presley Downing earned her angel wings on November 11, 2012, following a year long battle with Diffuse Intrinsic Pontine Glioma. She died swiftly and peacefully, surrounded by loving family. While Caitlin was only 5 years old, her life and her light shined on many and touched in ways that most people never could. Her radiant smile, love for life and laughter, and ability to show unconditional acceptance and kindness will continue to live on in our hearts. Her courage and bravery during her fight against cancer never wavered, and she was able to find only positive and funny things to say every time someone asked her about her illness or treatments. Caitlin reminded everyone who heard her story to live life fully, never take a moment for granted and love those around you. Our hearts are broken and we will desperately miss the gentle sass, tight hugs, and kind and caring spirit that made Caitlin all she was during her time on Earth. We will hold rainbows as a symbol of a promise, that she is healed and playing and laughing once again. And we will remember.
Caitlin is survived by her parents, Jeff and Denise Downing; sister, Courtney, brother, Cole, and sister, Campbell; also grandparents uncles, aunt and many friends.
A Gathering will be Thursday, November 15, 2012 from 6 to 8PM at St. Luke's Lutheran Church, 2021 W. St Rd. 426 Oviedo, Florida 32765.
A Memorial Service will be Friday, November, 16, 2012 at 12Noon at the Church.
We are asking that no one wear black or navy blue...any other color of the rainbow is fine!
I just want everyone to remember her spirit and her outlook on life and all the good she brought, and the positive lessons she taught us in quiet ways.
In our efforts to continue the battle against a horrible disease, we made preparations and donated Caitlin's brain and spinal column to be used in Dr. Mark's fight. We have asked that in lieu of flowers, a donation be made to Caitlin's treasured and beloved Dr. Mark and his continued efforts and research to find a cure for DIPG.
Checks can be made payable to: WCMC Department of Neurological Surgery
Mailed to: Dr. Mark Souweidane c/o Ms Ana Ignat
520 East 70th Street Box 99
New York, NY 10068
Please write: In Memory of Caitlin Downing in the memo section

Please view and sign the family guest book at
Baldwin Fairchild Funeral Homes
501 East Mitchell Hammock Road
Oviedo, Florida 327765-8481